It is said that a picture is worth a thousand words. Well, words can't describe these........
Tuesday, November 14, 2006
Hands of Friendship and Brotherly Love
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- Green Eyed Girl (6)
- In Pure Ivey Fashion (7)
- Ivey was Trached (16)
- Ivey's Baptism (1)
- Ivey's Decanulation (5)
- Pictures (66)
- So This Is My New Normal (29)
- Special Sibling Stories (11)
- Steps To Miracles (30)
- Tales Of A Normal Family...in our world anyways (8)
Ivey Elizabeth
- Our New Normal
- I was born with a rare genetic syndrome due to a partial deletion of my 21st chromosome. I have anophthalmia, which means I was born without my eyes. Therefore, I am blind and wear beautiful green prosthetic eyes. I do not hear very well, but will soon wear hearing aides. I eat through a g-j feeding tube in my stomach. I have microcephaly and a deformity to my heart. My cleft lip and palate have been repaired and my trach has been removed. I have triumphed over many obstacles, yet have many more to face. God has granted me many blessings. This is the story of my life and my family's new "normal".
A New Normal Begins
How should I approach Ivey to talk to her?
- Get on Ivey's level, if you can.
- Touch Ivey on her foot or arm to let her know you are there, keep touching her.
- Speak directly to Ivey in a clear voice.
- Tell Ivey your name.
- Talk to her just like you would any one else. Avoid baby talk! Be clear.
- If you are not sure what to say, describe yourself (don't be embarrassed), help to describe what is going on around her - noises - people - activities - special occassions - something funny - anything
- Ivey will learn to know YOU by your TOUCH, voice, smells, sounds of jewelry, laugh, the list goes on and on. Let her get to know You!
What can I expect from Ivey when I talk to her?
- Ivey does look down and to her right. Make her want to look at you.
- Ivey loves to touch faces. She especially likes mouths, try not to let her put her hand in your mouth.
- Ivey also loves to run her hands through hair.
- Ivey has quick hands. Watch earrings and glasses.
- Ivey will 'talk' back to you sometimes. Eventhough she only makes sounds, treat her sounds as statements and she will have a conversation with you.
- Ivey likes to play patty-cake and itsy bitsy spider
Is there anything I should not do when interacting with Ivey?
- Don't be afraid to touch Ivey. TOUCH, TOUCH, TOUCH. I always have Purell.
- If you want to guide her hands to an object, place your hands UNDER Ivey's hands to guide them.
- Ivey's hands act as her eyes, ears, nose and as tools. Don't restrain her hands. Do touch her as much as possible in a respectible and loving manner.
- If you want to hold Ivey, don't just grab her up. Touch her first. Tell her you are picking her up. Guide her arms up from under her elbows or arms, do not pull on her hands. Often Ivey will sign for "Up" when she wants to be picked up.
- Try to avoid pronouns and words like 'over there' or 'right here'. BE SPECIFIC! Use nouns. Instruct Ivey with solid words like 'up' - 'down' - 'right' - 'left', - etc.
- Again, AVOID baby talk. Ivey has a hearing impairment. It is difficult for her to hear certain letters and sounds. Talk to her as clearly as possible.
Learn more about Ivey
Her Butterflies
Parent Resources
- www.seedlings.org
- www.bittybraille.com
Once Upon A Time In A Place Far Far Away
Blog Updates
a small world after all
Everytime I hear that song....I go back
16 comments:
What a sweet princess with 2 very wonderful big brothers!!!! They all look incredible!! We love y'all!! S, K, & B
What a precious little princess! Thank you so much for sharing these pictures! Her mouth looks great!
I literally have tears as I look through these pics. Ivey looks great. I am sure the boys were thrilled to get to be with her!
Look at all those beautiful blondies! I'm so glad you shared these; Ivey looks great! Caiden and I still pray for her (and you!) every night, hoping you get to come home soon:)
it is so good to see yalls sweet faces!!! everyone looks great!!! i know it did her little heart good to hear her sweet brothers!!! we are praying for a quick recovery.
Thank you so much for sharing pictures of your beautiful baby girl. I have never seen her before, and am so glad I can now picture your precious baby in my mind as I read about her. We lift your family in prayer often.
What sweet pictures! I can see that Ivey is very well loved. :0) I think this is the first time I've seen Ivey. Thanks for sharing her pictures with us all.
What amazing pictures. Thank you so much for sharing. You are truly blessed to have such a wonderful family and 3 beautiful children!
Ivey is beautiful! You can tell that Knox and Walker love her so much.
What good big brothers, Ivey has. She looks amazing, despite what she has been through. Way to hang in there, Ivey!
She is beautiful!! And, what a sweet big brother!!
Praying you will get to go home soon. . .
what a sweetie! love the crown... it suits her. :)
What great pictures! She looks great! (No tape!!!) You all look so happy. Love the crown, it suits her. Sending lots of love and many prayers,
Jason, Tami, RayAnna and Jay
Your baby is so beautiful. I love the way her brothers love on her. It is so sweet! I found out about Ivey through faithlifts and pray for her often. God bless your family!
She is absolutely beautiful Gwen!
Still Praying,
Heather
What a beautiful family. Ivey is precious - all in pink and surrounded by her big brothers. Thanks for sharing these. Now I can picture her when I read your posts and whisper another prayer for her!
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